Patient involvement in the new NHS
My last two jobs have heavily emphasised the involvement of patients in healthcare. When I was commissioning maternity services, those patients were called women and now in the world of cancer they choose patients and carers over the more common term ‘users’. Both of these areas of healthcare have, for many years placed the experience of patients using their services at the centre of planning and delivery of services. At times those involved have felt that professionals pay lip service to this prescribed requirement. But I know that my senior midwifery and nursing colleagues have taken their role seriously as have I. Putting what is discussed in meetings into practice can be difficult as real events take over and people struggle with the realities of their job.
Most of the NHS Trusts (providers) have specific Patient and Public Involvement committees and groups, but these are not specific to a single condition or disease. Maternity is definitely different from the mainstream, given that in the main pregnant women are not ill and are not patients as such. Cancer (rightly or wrongly) also considers itself to be different with unique needs. Peer review measures for User Involvement require us to have a User Partnership within the Cancer Network, laying down a number of ‘measures’ relating to both the experience of patients and the involvement of service users and carers in services.
The new NHS throws all that we know about this kind of service (or disease) specific involvement will take place. I have had the pleasure of working with some amazing people in both areas over the years. They work hard, give up so much of their own time, often in conjunction with running their own busy lives. Sometimes in the case of my current user colleagues, they continue to manage the after effects of cancer or to battle recurrences of ill-health. They are not surprisingly a little anxious of what will become of their efforts once PCTs (who have been statutory expected to manage Maternity Services Liaison Groups) have been abolished and Cancer Networks have been subsumed into Strategic Clinical Networks.
Will the clinical networks be able to support real patient involvement within the entirety of their portfolio (cancer, maternity, children, mental health, stroke etc etc). Or will it be left to the NHS Trust, CCG and other more general Public and Patient Involvement groups to pick up the mantle. Will the stalwarts of maternity and cancer involvement join in with them, will some of them who are part of the Links mechanism become part of the Health and Well being Boards. Does it matter if this is about general patient experience and involvement or should their be something special for specific groups. Or will we lose something from all of this and will some of those committed individuals walk away. From some of what I have heard, many are disgruntled and hurt that the work they have done so far will apparently be lost, and they might just.
I am pretty sure that if I entered a competition, to name a new form of pandemic flu, first prize a trip to Mexico my answer wouldn’t be ‘Swine’. But I guess that I might not have forseen the involvement of the pig, so what do I know? The media here are loving this. Yes they would deny it, but if you can put on your
We have emerged from winter, it is officially spring and it is also, since last weekend, British Summer Time (which reminds me that I need to reset my blog’s clock)! I seem to have lapsed in many ways during the winter, I have allowed myself to put on weight, and must sort myself out if my new summer clothes are not too small before I even buy them (and no I won’t be buying any kind of bigger size). I have become lazy when it comes to my blog, and haven’t really written anything particualrly interesting about my own life, or the job I do for ages. 3 or 4 posts written over the course of that time have pushed my traffic up massively, but I am not sure anyone would return to read my blog until I buck myself up. I also need to get myself doing more things outside of work, with a son hopefully going to university in the autumn I surely need to get myself something more interesting to do than sitting on the sofa reading a book or watching TV. I need to get out more, I need to explore the environment more and I need to get more active. I also still wonder if I shouldn’t be looking for a new job, and indeed have one eye on the jobs market. Work though is really busy, commissioning has become quite a lot more interesting because actually we now have to do more in the way of managing performance and in turn we are being performance managed much more by the Strategic Health Authority. Maternity is an interesting area to be working with, since it is pretty high profile, there are targets to meet and those who use the service are not backwards in coming forwards if they are dissatisfied with what is on offer.
The other day I sat next to a senior midwife who told me that none of her fulltime staff is under 45 years of age. The younger midwives find fulltime work too tiring. Another told me that she was at the conference in her own time, and that midwives who want to attend a function I am organising in a couple of weeks will need to do so on their days off. The midwife establishment and staffing levels just don’t allow for much in the way of release for training, sickness or days off. On Thursday I needed to speak to a local Head of Midwifery, her PA told me that she was on annual leave, she had been into the unit that morning till 11am but had gone home now (it was about 1pm at the time). Nurses who blog on the internet also describe a long hours culture, one where people take no breaks and hardly have time for a glass of water or trip to the toilet in 12 hours. Even within the office environment it is considered more important to meet your deadlines than anything else even if meeting that deadline means staying till 6pm or more likely taking the work home and spending your evenings or weekends doing the work.
Having treatment to produce a much wanted child when you are unable to conceive naturally is something we have grown used to. At one time, when medicine was still learning about assisted conception there were a many multiple births. But time has moved on and now more embryos that are implanted during procedures like IVF survive, it is no longer necessary to implant quite so many. Plus it is entirely possible to remove some in order to promote the viability of those surviving. Even in this country, where we have a national health service such treatment is not without financial cost. Many people have been denied NHS fertility treatment, though that position has improved recently. But it is not just the assisted conception that you need to consider if you are planning to have a number of embryos emplanted in your uterus. To most people the idea of giving birth to 8 babies is nothing short of abhorrent, but apparently not to 
I ought to be much better at blogging by now, and what is more, if I can blog regularly even when completing a demanding masters course then I am not sure anything I do now is much of an excuse. Having said that, I do still have things to say, and amazingly more people have been reading particular posts even though I haven’t had much to add lately.


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